For years, patients suffering from Long COVID and ME (myalgic encephalomyelitis) have been stuck between a rock and a hard place: waiting for the snail's pace of research and trials, or spending hours poring through social media for anecdotes.
We believe there's another way. Patient-sourced data, analyzed with AI to get the community the information it needs quickly and efficiently.
Projects
Trying treatments for Long COVID and ME is like playing minesweeper: patients are getting better (or worse) from experimental treatments, and no one quite knows why. We aim to solve this by running focused, in-depth surveys on individual treatments and use AI to surface patterns: who benefits, who worsens, what correlates with outcome.
UK Long COVID & ME DoctorsThe first-ever directory of UK doctors and clinics that take Long COVID and ME seriously. Private and NHS specialists for POTS, MCAS, dysautonomia and more, each with patient-sourced notes on cost, telemedicine and what each one prescribes.
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About
This project is organized by Highly Agentic LC/ME, a group of patients from tech and research backgrounds volunteering their time to give back to the community.